FASD Hub

FASD stands for Fetal Alcohol Spectrum Disorder. It can arise from alcohol exposure during pregnancy and affects the developing brain and body of an individual before they are born. FASD is a lifelong, neurodevelopmental condition, often referred to as a hidden disability. Each person with FASD is affected differently. Each person with FASD has both strengths and challenges.

Individuals with FASD and their families may need support to learn FASD-informed strategies to help them prosper. When an early diagnosis is made, the right supports are put in place in education, at home, and in the workplace, individuals are more likely to succeed and achieve throughout life.

Care experienced children and young people could be four times as likely to have FASD as the general population with some studies estimating prevalence could be as high as 33%.

(Lange et al., 2013)

FASD is estimated to be 3-5 times more prevalent than autism and on par with typical ADHD.

(FAAST 2013 / SIGN 145)

FASD Hub England

Family Support Service

Our FASD Family Support service provides bespoke support to parents and carers through 1:1 support and group sessions. Delivered by our team of knowledgeable and experienced FASD Advisors with oversight from Adoption UK’s Psychology and Therapy Hub (PATH), our advisors work closely with families to build knowledge, confidence and skills on issues include FASD diagnosis, FASD informed parenting strategies and education.

To find out more and to make a referral, email [email protected]

England Family Support Flyer

Peer Support

We have an online community of people who truly understand the highs and lows of parenting a child or young person with a history of prenatal alcohol exposure. Our private Facebook group is a safe space where we can share our joys and challenges. It is closely moderated by the FASD Hub Scotland team who are also on hand to answer any questions. To join, search Facebook for ‘FASD Hub Scotland Peer Support Group’ and click to join and enter your email address when requested. We will email you membership form, which we ask all members to complete to help us make the group a safe space for all. This group is open to all parents and carers from across the UK.

FASD Community Groups

Our FASD community group meet monthly. Details can be found in our Peer Support group.

Training

We run a number of training courses for parents, carers and professionals including:

FASD Unlocked
FASD: Next Steps for Caregivers
FASD: Helping Sleep Happen
FASD: Connective Parenting
FASD: Insights and Strategies for Professionals
FASD: The Teenage Years

All our training is delivered by members of the AUK staff with lived or professional experience of FASD.

Find out more about training here

Resources

With over 70 downloadable resources, we have a information on everything from Anxiety to Zones of Regulation. All our resources are freely available on this website, where you will also find factsheets relevant to your own nation.

Contact us

The Adoption UK Support and Information Line is able to offer advice, a listening ear and signposting on FASD issues. They are supported by a team of FASD Advisors who can offer advice on more complex issues. Call us on 0300 666 0006.

You can also email our FASD Hub Scotland team with any queries at [email protected]